Stigma & Me: Meeting Notes

In last weeks support meeting, we discussed stigma with HSV. We shared stories about times where we’ve seen or heard others stigmatize HSV. (Even how we may have perpetuated stigma before we were diagnosed)

We discussed the commonality of HSV and questioned the separation of the medical community and the common public. HSV is not included in a standard STD panel. Most of us are told it’s because it’s too common. Because of the prevalence of “cold sores”, it’s difficult to pin down exactly how many people have HSV.

The CDC (Center for Disease Control) only perpetuates this by not tracking HSV as they do other with other STD’s. We want to know their reasoning as to why this is not tracked!

The frustration we share…. if it is so common… why is there still stigma? Why are cold sores acceptable but having the same virus downstairs is unacceptable?

We exchanged ideas on how can we end the stigma.

  1. Making it widely known and accepted cold sores are herpes.
  2. Writing the CDC and local doctors urging them to report instances HSV.
  3. Create a campaign advocating HSV be included on a regular STD panel.
  4. Urge people to get tested- even if they aren’t showing symptoms. HSV can be spread even if they’ve never had an outbreak. This can only be diagnosed through blood testing!
  5. Contacting local schools and health departments insisting they teach children facts on HSV rather than using scare tactics and abstinence. (HSV can be spread when using condoms. Cold sores, HSV, can spread to the genital areas through oral sex.)

These are all things we can do anonymously. Through the internet- anything is possible. We can be protected with private profiles while still spreading the word. There are a few brave souls who have gone transparent but it is not necessary for the truth to come out.


Support Meeting Today- “Stigma & Me” 

Today’s Topic: “Stigma & Me” 

This week we will explore the stigma that comes with HSV- why is it taboo when it’s so common? How did we get here and can we change it?!

Why is it we feel so alone when first diagnosed? When most of the population has a form of HSV? Stigma, y’all! It’s something almost everyone has and refuses to discuss. It’s up to us to stomp it out!

People hide behind terms like “cold sores” and “canker sores”. We all know what’s on your face, Karen!!!

See you tonight!

We’ve partnered with the Polk County Health Department to provide an in-person herpes support group. The group will meet regularly; every 3rd Tuesday of the month @ 6pm. Hope to see you there!

August Support Group Meeting

This months meeting topic is “The Talk: Wins, Fails & Me Too’s”.

Let’s share stories, tips and advice on how to have a successful disclosure! You won’t leave empty handed- DSMHSV will provide a concise fact sheet with transmission rates, myths about HSV and additional resources to give to potential partners. Can’t wait to see everyone there! 🙂

Meeting is at the Polk County Health Department- 1907 Carpenter Ave, Des Moines, IA 50314